Working on a respiratory unit I often have patients that have been diagnosed with Cystic Fibrosis (CF). This is a population I never worked with at my previous position in the pediatric emergency room so I had a lot of learning to do coming into my new position. May is CF awareness month so I thought I’d share some of the amazing resources I have found to help educate and support our CF patients.
With a quick google search, I was able to find (free!) resources via the cystic fibrosis foundation web page. I requested a couple of items, one of which is my ultimate favorite: a coloring/story book about a little panda with CF name Huxi! I was also sent booklets for parents/caregivers, booklets for teens, and a big “ultimate guide to CF” binder, stress balls, and luggage tags. I am so thankful for all of these resources and how they will help my patients (and myself) learn more about CF.
To see where I found these resources, follow the link below:
Child life specialists help kids cope with hospitalization through the power of play & education. 
One response to “Cystic fibrosis resources! ”
These. Are. Perfect!! Thank you! I have been working with the same CF patient since August in volunteering and I love reading up more about it and finding more ways to help her. So thank you!!