I personally have this book sitting on my bookshelf — it’s a great addition to make to your child life section!

When facing a life-challenging or even terminal illness, it’s all about being normal. That’s what kids and teens want for themselves and from the people around them. With wit, wisdom, and courage, young people ages 7–21 tell in their own words what it’s like to be ill while trying to live each minute of their daily lives…” 

Source: http://www.amazon.com/Forever-Hellos-Hard-Good-Byes-Life-Threatening/dp/1575422727/ref=sr_1_5?s=books&ie=UTF8&qid=1357849294&sr=1-5&keywords=child+life+specialist